I had my MRI a week or two ago and we got the results on Tuesday.
Overview: my brain has never been in perfect working order due to my extreme premeturity and left ventricle hemorrhage when I was a baby. In 2013 I became severely ill with a virus that left me hospitalized with extremely paralyzed vocal cords and stridor, as well as loss of taste and smell. That continued for almost two years and eventually dissolved into a vocal tic that remains maintained via medication. I still have no sense of taste or smell and we have no idea how this illness came about other then the virus.
findings :
Good - nothing super severe
I didn't need any major surgery
Bad- a cyst in my sinus's
Scarring/inflammation on my left ventricle
A small lesion/tumor.
No Answers
They found a small tumor and I was admitted and they took it out and I went home a few days later. They also spotted another small lesion that they will just watch. And we found no answers.
The quest for answers continues, I see Dr. Hartnick on September 2nd.
I hope the tumor was benign! How are you feeling after surgery?
ReplyDeleteIt was luckily! It could have been a relapse from when I was little (around 3 or 4) when I had a possibly cancerous brain tumor.
DeleteI feel okay my head just hurts a bit sometimes.
Let's hope that lesion doesn't affect anything too important. How's recovery going?
ReplyDeleteHopefully it doesn't. It's going pretty well.
DeleteThat's good. Let's hope everything can die down.
DeleteYeah. Hopefully.
DeleteDo you ever get awkward in situations when you cannot offer any pragmatic assistance to others? I tend to feel helpless when I cannot do this.
DeleteAnna!!
DeleteYou changed your Blog name!! Ender-Chan!! I love it, Friend!! ;)
"Stay hard, stay hungry, stay alive", Raelyn
Ender-Chan
DeleteYes I do and it's not very fun.
Through herpes simplex or something like this? Or a gene tap?
ReplyDeleteVentricle - heart?
Glad the tumour is out and the lesion is watched.
Like Kathryn and FlutistPride - any post-surgery feelings?
I don't understand the first question. Explanation please.
DeleteThere are ventricles in the brain as well that pump blood through, when I was still in the NICU I had a hemorrhage in my left ventricle.
Same, hopefully that lesion doesn't prove to be too troublesome.
My head just hurts a bit sometimes and I'm tired.
Was wondering: "How was the virus transmitted?" Should have asked that straight off the bat.
DeleteGood to know about these brainy ventricles!
Ah ha, we have no idea how it was transmitted, or even what virus it was!
DeleteIndeed!
M....
ReplyDelete"Good - nothing super severe. I didn't need any major surgery!" Who-hoo!! Thanks be to God for that good news!! ;-D
"Bad- a cyst in my sinus's. Scarring/inflammation on my left ventricle. A small lesion/tumor." Oh, I am so sorry.... Obviously none of that sounds very good or positive!! I am glad your doctor{s} decided to remove your small tumor, though!! Because, what if it were to become cancerous someday?! What if it already was cancerous?! I am so sorry that you have no answers right now.... Not knowing anything, being "in the dark", as that phrase goes, not having even one clue--if you will--to solve the mystery of your health issues.... It would drive my inner Sherlock Holmes absolutely crazy!! I am so sorry. That is all I can say, Friend. I am so sorry.... Hugs!! I am praying for you!! ;)
Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the LORD shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not be faint. --Isaiah 40:30-31
"Stay hard, stay hungry, stay alive", Raelyn
Yay good news!!!
DeleteI see Dr. Hartnick on September 2nd to check out that sinus stuff (which means another surgery.)
The Scarring has mostly always been there but the lesion needs to be watched. None of its positive, that's why it's labeled "Bad News"
Yay for Dr. Robbins and the rest of the team! Also they had to do a small blood transfusion because I was slightly anemic and so I met Jacks main dr. His hematologist Dr. G! I texted him because he won't be back until Wednesday saying "I'm having a small tumor taken out and I met Dr. G." He texted back with good wishes and that "if it's anything hematology, Dr. G is the best." So that was nice
Don't worry it was benign.
Being in the dark isn't fun.
Thank you for the prayer.
M....
Delete"I see Dr. Hartnick on September 2nd to check out that sinus stuff (which means another surgery.)" September 2nd. Alright.... I will keep you in my prayers that day!! Let us know what the results are and what they find/found!! ;-D
"None of its positive, that's why it's labeled "Bad News". I know.... I know. As someone who idolized our wonderful pediatrician, Dr. F. growing up, who wanted to be a doctor for several years throughout my childhood {I am not smart enough!! Oh well.... I am a writer, I'm an artist!!} and who is still oddly interested in medical stuff, I understand!! Trust me. I may not know everything, but I "do" doctor stuff!! ;)
"Don't worry it was benign." Thanks be to God!! ;-D
"Being in the dark isn't fun." Yeah, it sucks, huh? Hang in there, Friend!! ;)
"Thank you for the prayer." Your welcome!! I somehow felt lead by God to send Isaiah 40:30-31 your way!! It is actually scripture from the Bible, but it can work just fine as a prayer, as well!! ;-D
"Stay hard, stay hungry, stay alive", Raelyn
Thanks. I will!
DeleteI kind of idolized my GI when I was little. You are smart enough raelyn!
Yeah!
It does, I will. Ah it's similar.
M....
Delete"I kind of idolized my GI when I was little. You are smart enough raelyn!" We're such Kindred Spirits, Friend!! I love it!! I am not smart enough to be a doctor.... But that's alright with me!! No, I did not cheat myself out of achieving something great and important in my Life, because I was/am not smart enough/good enough. I don't have any regrets none whatsoever that I didn't follow in Dr. F.'s footsteps!! As a matter of fact, I can totally relate to this particular Bruce Springsteen quotation....
I have to write and play. If I became an electrician tomorrow, I'd still come home at night and write songs. --Bruce Springsteen
If I became a pediatrician tomorrow--like Dr. F.--I'd still come home at night and write fictional stories!! Or rather, I would wake up real early before work {I am an early bird!!} and write fictional stories!! Because I am a writer, an artist who paints pictures with words!! ;-D
"Stay hard, stay hungry, stay alive", Raelyn
Oh, wow! Best wishes for a swift recovery. You're really brave to just take all of this in stride this way. I would be freaking out and it would be thousands of words that didn't make sense. I hope they find a way to help you get your senses of taste and smell back, too.
ReplyDeleteKacey @ Glendale MRI