Medical update

Alright, so I was down at mass general this afternoon...Stopped bye to visit Alexander afterwards but I'll get to that later.

I saw my psychologist and we talked about home stuff and how schools going ext. Coming out to my dad may be a lot harder than we thought, he found a school assignment of mine about if we could choose our names and he asked me about it in the car a few weeks ago and I told a white lie and said it was a school assignment last year from communications lab and creative writing in English class. Then after that and brainstorming with Dr. She's and my mother we walked down the street to Mass eye and ear to meet with Doctor Hartnick, my ENT and "primary team chair" so to speak. He is working on an appeal to get me my (much needed) surgery because of a six millimeter cyst in my maxillary sinus and also getting my, luckily noncancerous and shrinking with treatment brain tumor removed. That should get done in a couple of weeks hopefully by a college of Dr. Hartnicks named Dr. Song, who works in the oncology department of MEEI as well as the speech department and treated me briefly to try and get the stridor to stop.

Speaking of stridor...

It's been coming back more recently :( And that's not good at all because that could just make the trauma from the original illness two years ago even worse. That's one of the other reasons we saw Doctor Hartnick. But there was someone else there too who was called in because we need help figuring the hearing part out. Doctor Cohen also works in the pediatric ENT office and his specialty is hearing/balance disorders and hearing loss. So I have good news and bad news from that. The good news is I'm getting fitted for new a FM and/or hearing aids on November Twentyninth, so next Tuesday. I'm excited about that. And the bad news is apparently I have a paradoxical pallete and my ninth and tenth nerves are practically destroyed. So that's not good.

Why'd you visit Alex where is he?

He had a really bad panic attack and then he fainted (he was standing up) and hit one of those metal school chairs on his head and Mr McCarthy told ms K to call 911 and Mr. McCarthy wiped some of the blood away from his head and we all picked him up because he was unconscious and brought him to the nurse and waited until the EMT came and brought him down to mass general and surgically stiched him up. And then he chatted with some psychologists and he stayed overnight in ICU so they could make sure he was stable at the time because he was unconscious for around eight hours. Then the next day was transfered to a regular floor and the nurses brought him over to mass eye and ear to get him tested for virtigo, a disorder that makes you dizzy and fall over. He tested mildly positive for it. So then back over at MGH the psych team did a neuropsych evaluation to assess where he's at psychologically and developmentally/emotionally, because of his anxiety. And so the conclusion they came to was he has (as well as "normal anxiety" and such) Generalized Anxiety disorder (being nervous in general) and panic disorder (what causes him to have panic attacks) as well as a concussion. And so they kept him at MGH for the week to make a plan going forward and maybe increase his medication and then he goes home today. They just wanted to observe and make sure he was healing okay.

So that's the update!

Until next time,
M