Almost a year

on the 13th of June I will officially be sick for one year. I haven't been able to breath through my nose,smell or taste since Friday June 13th 2014. Ironic right and the best ENT,pulmologist,neurologist,radiologist, endocrinologist and geneticist still have no idea what so ever what is wrong.they have literally never seen symptoms like mine befor. My main ENT at mass eye and ear, Dr. Christopher Hartneck said to me in October "Please try to go see other doctors,really anyone I'm tuning out of options and I really can't or want to see her with a trach (a breathing tube) Dr kinnane said the same thing when I talked to him." Since October something changed befit I had severe bilateral VCP and now I just have severe bilateral VCD but I have had stridor the entire time. The stridor  has lessened but I don't feel any better and it's still hard to breath. I don't like being sick I spent most of last summer in the hospital so that wasn't fun. In conclusion I'm kinda sad about still being sick.

Until next time,
Meredith