I went to school today to look around and found the FM systems.
Their sound field. There Damn sound feilds! Why!!! Why can't you just give me a personal one so I can hear it! Seriously come on! Also I did some reaserch and it says on a website that manufactures FM sets that Sound field FM systems were designed spicificly for normal hearing students, NOT kids with hearing loss or auditory challanges and that all students with hearing loss or APD (auditory processing disorder) should have a personal FM set instead of a sound field FM!
As you can see I'm pretty upset. Because seriously first they tell me I'll get them in June,then in August and now they don't even give me a personal FM Set!
I'm mad.
It must be infuriating to not get what you need to succeed.
ReplyDeleteIt is. It really is. :( after the ABR if/when I get hearing aids then the audiologist will fight a little more to get me a personal FM if I don't automatically get one. Or if the sound field just won't work enough.
DeleteThat audiologist had better fight like Eowyn for you.
DeleteI hope she does especially because today they had the sound fields on but it made very little no difference. And eowyn is awsome.
DeleteNO!!! Yes I am very upset for you. You should get an personal FM. You need one. This isn't fair! Is it in your IEP/504 as a personal FM system? Try to fight for it, of course getting the hearing aids will help. When I was starting school, the CSE coordinator didn't want to give me an FM system but my mom and my audiologist fought for me and I got it. I really, really hope you get one soon. And hearing aids. This shouldn't take so long. I feel bad for you. :(
ReplyDeleteMy iep and audiology notes just say FM system it doesn't specify which type we will try to fight for it and I can tell my hearing teacher at school because the sound fields are at the back of the classrooms and I have preferential seating so it won't help as much as a personal one especially when there is lots of noise,which is nearly always. After my ABR the audiologist will fight more for me or if it's really just not enough for me to be able to hear. Luckily I'm also learning to read lips, I've gotten pretty good at reading simple words or sentences and I know a little ASL.
DeleteI have an idea that may help while all this stuff out; could you get copies of the notes from a note taker(another student or teacher) so you can follow along even if you cant hear? Just an idea.
DeleteI get copies of notes because of my my hearing loss and my handwriting issues and I have a note taker as well as a teaching aid who I met yesterday who does ABA (applied behavior analysis) and just helps me in general. Thank you for the ideas. You can Let me know if you think of any other ideas as well.
ReplyDeletePlease clarify "ABA". I was forced to become right-handed from classic, Lovaas-style ABA, but some wonderful therapies are simply called ABA so they will be covered by insurance. If you are forced into submission, denied any method of communication, or coerced into doing something that is unnatural for you, speak up, document and report this action. I was young (4 y/o) when I was forced to become right-handed, so I could not do these things. If it happens to someone else, speak up. (Just a handy reminder in case you see something unsettling)
DeleteThe type of ABA I have is trying to build life and communication skills by analyzing behavior and if the aid that's with me see's something wrong happening they will try to correct me example: when someone is talking don't walk away in the middle of the scentence. Or shake someone's hand firmly so your not a "dead fish" (floppy hand) but don't shake it too hard. My ABA is done through my school ISS and FSP program. (functional skills and integrated specialized services programs)
DeleteI'm not good with firm handshakes unless I initiate them; my hands are usually "dead fish" if someone else shakes my hand. The handshake thing is kind of disconcerting for me. Is firm handshaking a priority to you? If it is a priority to you, by all means work on it. If it causes you any pain, tell the therapist. It's good that the therapist is not trying to change your handedness.
DeleteHand shaking and eye contact are things we work on a lot. If anything that I'm doing gets stiff or painful then we switch to something else because of my myotonia. They couldn't really make me change my handedness or dominant side even if they tried. The right side of my brain was more affected by the hemorrhage I had when I was a baby while the left side of my brain had a tumor when I was three. And both sides were affected by seizures.
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