Well I'm back, only this time from Boston Children's hospital/Dana Farber Hemotology/blood disorders and Cancer center. Somethings messed up with my blood flow, it doesn't go the right way through my heart. Weird right? Well it's very rare but then again so is Kabuki Syndrome. I'm at a pre-op and I'll most likely be here to around midnight. Anything there is to check they will check it. Dr.G had to go talk to the blood draw people and my parents had to go make Ben dinner so it will just be Will and I for the next hour and a half to two hours. I just had some X-rays and a height check, and because my growth plates are messed up they had to move them around and it really hurt! Like I cried and I never cry. And they have to do a wrist blood draw in my artery and then give me a spinal tap and do a bunch of other stuff!!!!!
Today is not a very good day, wish me luck.
Jack + Will Kramer
That's a lot of medical procedures for one day! Get some rest when you can. You will need it.
ReplyDeleteYeah it is, we still have around 4-6 hours left. Ugh, I want to take a nap. Also spinal taps hurt!!!!! ;(
Delete*offers hug, wipes away tears*
DeleteAccepts hug, thanks flutistpride.
Delete